The inevitable has occurred.

May 24, 2009 3:54 PM

Faith Hope, the anencephalic infant from this post a little over a month ago, died yesterday.
posted by longsleeves to MetaFilter-Related at 3:54 PM (34 comments total)

Poor lady.
posted by dunkadunc at 4:05 PM on May 24, 2009

I noticed this earlier today too. I'm glad the little girl is at peace and wish her mom well.

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posted by FelliniBlank at 4:24 PM on May 24, 2009

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posted by roll truck roll at 4:43 PM on May 24, 2009

There is some mercy in the world, inevitably, eventually. Even in the grey.
posted by hermitosis at 4:44 PM on May 24, 2009

The best 93 days of my life...were spent with my daughter.
posted by Sova at 4:49 PM on May 24, 2009

That was a post fille with sadness then and this is a post filled with sadness now. I can't pretend to know the kind of pain that the parents' must feel but I feel sad reading about it. I hope that the pain will fade.
posted by Kattullus at 5:56 PM on May 24, 2009

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Here's hoping she'll be blessed with another child who'll spend a long and happy life with her.
posted by Marisa Stole the Precious Thing at 6:02 PM on May 24, 2009 [8 favorites]

I don't know Kattullus,.. I read the blog and I dont get any sense of sadness from it. Appears to me like a mom who wanted to give her child as much genuine love as possible during the time she had,.. so thats what she did. I was pretty uplifted by the strength, beauty and grace of the story.
posted by jmnugent at 6:52 PM on May 24, 2009 [2 favorites]

I followed the blog, and, except for the poor mother having to deal with lots of trolls and insensitivity, Faith's story sounds like the ideal outcome for a child with a birth defect of this magnitude. She lived peacefully and mostly painlessly, was deeply loved and cherished, and she died gently and with enough lead-up that it sounds like Myah, her mother, was able to say her goodbyes and feel as at peace as one possibly could with such a sad event. I'm a staunch atheist who's generally inclined to side with modern medicine on most matters, but I really enjoyed reading the blog (which, BTW, is not at all accurately reflected in the post or thread on the blue) and was rooting for the Myah and Faith, not to mention very moved by Myah's deep love and endless advocacy for her sweet-faced little girl. I hope Myah feels forever peaceful about Faith's life. I think she was a tremendous mother and that Faith was lucky to be so deeply, truly loved.
posted by pseudostrabismus at 9:05 PM on May 24, 2009 [13 favorites]

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posted by Space Kitty at 9:40 PM on May 24, 2009

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posted by artychoke at 9:43 PM on May 24, 2009

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posted by lukemeister at 10:35 PM on May 24, 2009

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posted by DreamerFi at 11:41 PM on May 24, 2009

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I hope she goes on to have many healthy, happy children in the future. She comes across as a loving mother.
posted by saturnine at 1:02 AM on May 25, 2009 [1 favorite]

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posted by allkindsoftime at 6:18 AM on May 25, 2009

The best 93 days of my life...were spent with my daughter.

I can relate to how she feels. I have a pretty good friend whose daughter was born too prematurely to survive even in incubation. She lasted 16 minutes, and they took the 16 minutes to say both hello and goodbye to their child. The funeral was pretty gut-wrenching.
posted by Devils Rancher at 6:47 AM on May 25, 2009

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posted by bitterpants at 8:30 AM on May 25, 2009

Here's hoping she'll be blessed with another child who'll spend a long and happy life with her.

Yes, this. Myah showed grace of the most profound sort in caring for her daughter with such love.
posted by jokeefe at 10:10 AM on May 25, 2009

I hope she goes on to have many healthy, happy children in the future.

And let's hope that the "preacher" who brought her to God and then knocked her up is not involved in any way.
posted by fatbird at 2:40 PM on May 25, 2009

Man, this is just too sad. I'm glad Faith was born to a woman with that much compassion and love, and yet I'm also glad, in an inexplicable way, that it's over for her as well. I hope that Myah is comforted by the faith upon which she relied so heavily throughout this experience.
posted by shiu mai baby at 5:45 PM on May 25, 2009

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posted by Halloween Jack at 6:38 PM on May 25, 2009

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posted by OolooKitty at 8:17 PM on May 25, 2009

I hope she goes on to have many healthy, happy children in the future.

God help the rest of us, if she doesn't.
posted by Blazecock Pileon at 10:44 PM on May 25, 2009

Post-mortem experimental brain transplant anyone?
posted by runcibleshaw at 2:48 AM on May 26, 2009

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The best 93 days of my life...were spent with my daughter.

Amen.

I'm glad her little girl is at peace. Thanks for updating us, dunkadunc.
posted by zarq at 7:42 AM on May 26, 2009

Jesus, runcibleshaw. A little compassion would not, in fact, kill you.
posted by shiu mai baby at 9:40 AM on May 26, 2009 [2 favorites]

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I just can't imagine how I would cope. I decided not to click on the blog when it was first posted, and I made the mistake of doing so now, as I am sitting here on a break at a work retreat. And now I'm crying at work. Awesome.
posted by gaspode at 12:09 PM on May 26, 2009

What a strong woman. I hope she finds peace with her daughter's passing, and goes on to have many more.
posted by roomthreeseventeen at 12:36 PM on May 26, 2009

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And let me say that I'm pleasantly surprised by the (overwhelmingly) respectful tone in this obit thread.
posted by availablelight at 12:39 PM on May 26, 2009

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I, too, have been following her site since it was posted here, and I mourn for her loss.

I also hope, in a strange way, that someone, somewhere, in the medical community learns something from Faith's life. We are all so much more than just a diagnosis.
posted by anastasiav at 1:41 PM on May 26, 2009 [1 favorite]

Many potential Faiths have been prevented thanks to mandates requiring that foods be fortified with Folic Acid.

This was a pretty horrifying story. On the bright side, at least Faith never actually experienced any of this.
posted by mullingitover at 5:57 PM on May 26, 2009

I am relieved for the mother that there was a gentle passing of this life. And like mullingitover, I'm also glad that this little life did not experience any pain.
posted by agregoli at 11:51 AM on May 31, 2009

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posted by Morrigan at 4:45 PM on June 9, 2009

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posted by Ambrosia Voyeur at 11:22 AM on June 16, 2009