Suddenly Nicky August 2, 2008 9:56 PM   Subscribe

Look who's back!
posted by netbros to MetaFilter-Related at 9:56 PM (157 comments total) 5 users marked this as a favorite

Yay! I was just thinking about her the other day, wondering how she was doing.
posted by maxwelton at 10:02 PM on August 2, 2008 [1 favorite]


Sweet. I've been following her blog on and off. Good to see she's feeling up to commenting here.
posted by orthogonality at 10:07 PM on August 2, 2008 [1 favorite]


Welcome back, nickyskye! You bring good news. You are good news!
posted by carsonb at 10:07 PM on August 2, 2008 [1 favorite]


Welcome back, nicky!
posted by Blazecock Pileon at 10:12 PM on August 2, 2008 [1 favorite]


What wonderful news. I've also been thinking of you nicky. I hope you have an easy and full recovery.
posted by felix betachat at 10:20 PM on August 2, 2008 [1 favorite]


Awesome! Glad you're well!
posted by jason's_planet at 10:38 PM on August 2, 2008 [1 favorite]


Yay, nickyskye, I have missed you.
posted by librarina at 10:38 PM on August 2, 2008 [1 favorite]


Welcome back.
posted by Astro Zombie at 10:41 PM on August 2, 2008 [1 favorite]


Aw, I'm glad about the good news you got recently, and glad to see you back.
posted by flibbertigibbet at 10:49 PM on August 2, 2008 [1 favorite]


OMG, I can't figure out half the words she's using in that comment... what have they done?!

Welcome back! You're one of the reasons this place struck me as awesome.
posted by not_on_display at 11:02 PM on August 2, 2008 [1 favorite]


Yay! Welcome back!
posted by stefanie at 11:06 PM on August 2, 2008 [1 favorite]


Good to see you here, nickyskye.
posted by LobsterMitten at 11:21 PM on August 2, 2008 [1 favorite]


Dibs on the leg.
posted by Meatbomb at 11:24 PM on August 2, 2008 [2 favorites]


Yay!
I missed you terribly and I am glad you are feeling better.
posted by caddis at 11:26 PM on August 2, 2008 [1 favorite]


Welcome back, nickyskye! :)

*~*~*~*~*~ throws confetti ~*~*~*~*~*
posted by amyms at 11:47 PM on August 2, 2008 [1 favorite]


*squees*
posted by Ambrosia Voyeur at 12:01 AM on August 3, 2008 [1 favorite]


*raises torch and pitchfork, begins shouting*

WHY WE OUGHTA *looks around sheepishly, blinking, lowering torch and pitchfork* ...give you a nice warm welcome back?

Oh, these? I was just, erm... turning hay in the loft. At night. Holding a flaming pitch torch. Yeah. *whistles*

You weren't particularly attached to your cat, were you? Oh, I see, of course. Err, nothing. She's fine. Uhm. Assuming you don't mind the extra heads grafted on and the purple mohawk. Mowhawks. Meowhawks?
posted by loquacious at 12:05 AM on August 3, 2008 [1 favorite]


Wow, that is really great news. I'm really happy to hear it - welcome back Nickyskye!
posted by ooga_booga at 12:10 AM on August 3, 2008 [1 favorite]


oh gawdddd, this is deliciously embarrassing. *grinning and nervous and laughing at loquacious' comment and getting teary a bit at all the loving attention too.

Ambrosia Voyeur just MeMailed a heads up about this thread.

Thanks so much for the lovely and loving welcome you guys. Big hugs all around!

Mefites literally got me through this year. You guys saved my life. Really. Thank you. Words can't do my gratitude justice. Truly, thank you.
posted by nickyskye at 12:20 AM on August 3, 2008 [4 favorites]


I am so thrilled at the news on the blog. Welcome back.
posted by grouse at 12:27 AM on August 3, 2008 [1 favorite]


Great to have you back, nickyskye! And it's even more wonderful that you're back with a clean bill of health and are in complete remission.

My father-in-law died just last sunday from mesothelioma at age 64. Mesothelioma itself is almost completely untreatable, but it had also metastised to all his surrounding organs, so there was no hope. It's just heartwarming to see people beat fucking cancer and go on to have long healthy productive lives. WTG, tough chick :)
posted by Devils Slide at 12:37 AM on August 3, 2008 [1 favorite]


Perceptible rise in tone on the 'filter.
posted by Cranberry at 12:38 AM on August 3, 2008 [1 favorite]


Welcome back, nickyskye. I had missed the way you add something new and interesting to every thread you comment in. I hope your health is improving.
posted by Kraftmatic Adjustable Cheese at 12:50 AM on August 3, 2008 [1 favorite]


Ambrosia Voyeur just MeMailed a heads up about this thread.

Well, if one of your heroes dished some serious whoopass to the Big C and then turned around and added you as a contact, you might do a little memailin' dance, too!! *tosses undies up on stage*
posted by Ambrosia Voyeur at 12:57 AM on August 3, 2008 [1 favorite]


nickyskye is so very much less than three.

Good to have you back, and good to see that you're doing well enough to be back.

A TOAST I SAY

*steps up to the line*

*raises glass*

To nickyskye, one of the best people to ever grace this joint.

*drinks*

*tosses glass into fireplace*
posted by dirtynumbangelboy at 1:16 AM on August 3, 2008 [3 favorites]


Great to see you back! You've certainly been missed by this Mefite!
posted by kamikazegopher at 1:58 AM on August 3, 2008 [1 favorite]


Threads like these renew my hope in MF. Dammit.

Everyone needs a hug, but I think you get all the hugs today Nicky - welcome back.
posted by allkindsoftime at 2:42 AM on August 3, 2008 [1 favorite]


Bet I'm not the only one that saw this and thought "Could it be...? Yes!"
posted by Wolfdog at 2:48 AM on August 3, 2008 [1 favorite]


Yay.
posted by tiny crocodile at 3:22 AM on August 3, 2008 [1 favorite]


I love you, nickyskye, but you already know that. Great to see you back at MeFi.
posted by flapjax at midnite at 3:46 AM on August 3, 2008 [1 favorite]


Yay Nickyskye! Very good news - so glad to hear it!
posted by triggerfinger at 3:46 AM on August 3, 2008 [1 favorite]


Oh, hooray! Welcome back, wonderful nickyskye! What terrific news -- the world just changed for the brighter. So glad you're back with us!
posted by vers at 4:38 AM on August 3, 2008 [1 favorite]


Huzzah!
posted by Baby_Balrog at 5:21 AM on August 3, 2008 [1 favorite]


So good that you're back. I saw your comment in the urban gentrification (or whatever word they use nowadays) thread, and came over here, knowing there'd be a thread to say....

Welcome Back!

Best wishes for a swift and full recovery.
posted by Nick Verstayne at 5:46 AM on August 3, 2008 [1 favorite]


hiya pal, lang may yer lum reek : )
posted by sgt.serenity at 5:54 AM on August 3, 2008 [1 favorite]


I will drink to nickyskye, yes, I will very happily do that.

Good to see ya, lass.
posted by stavrosthewonderchicken at 6:02 AM on August 3, 2008 [1 favorite]


It's wonderful to have you back here Nicky. Your absence was tangible and I thought of you often.
posted by tellurian at 6:28 AM on August 3, 2008 [1 favorite]


My screen's all blurry.
posted by Optamystic at 6:34 AM on August 3, 2008 [2 favorites]


I'm so very glad to see you back, Nicky.
posted by essexjan at 6:41 AM on August 3, 2008 [1 favorite]


Welcome back Nicky! It was such a nice surprise to see your comment last night. I could sleep for a little bit, lurked a little - and there you were. It made my heart smile.
posted by dog food sugar at 6:50 AM on August 3, 2008 [1 favorite]


this is awesome, awsome news! Welcome home Nicky!
posted by Wilder at 7:03 AM on August 3, 2008 [1 favorite]


Odd, just the other day I was wondering about you for no apparent reason. THERE WERE SIGNS OF YOUR RETURNING WRIT ON THE ATMOSPHERE. Or something.

So glad you're back!
posted by [NOT HERMITOSIS-IST] at 7:44 AM on August 3, 2008 [1 favorite]


no apparent reason...

WHAT? You know the reason, man: nicky is THE AWESOME!!!!
posted by flapjax at midnite at 7:50 AM on August 3, 2008 [1 favorite]


My heart leapt when I saw you had added someone to your contacts. The place feels nicer already, just knowing you're around. Yia sou and khronia polla!
posted by languagehat at 7:51 AM on August 3, 2008 [1 favorite]


Is it me, or did it just get nice in here?

Welcome back, Nicky!
posted by goodnewsfortheinsane at 7:59 AM on August 3, 2008 [1 favorite]


Brand New Day indeed.
posted by netbros at 8:02 AM on August 3, 2008 [1 favorite]


Brand New Day indeed.

It ain't new, netbros. Nickyskye has always inspired good feelings and goodwill in folks around here. There's plenty of tiresome jerks and snarkers, and they occasionally get the negative vibes what's coming to 'em, but nickyskye gets an outpouring of love and friendship, cause that's what she gives out.
posted by flapjax at midnite at 8:05 AM on August 3, 2008 [1 favorite]


Hooray!
posted by BitterOldPunk at 8:10 AM on August 3, 2008 [1 favorite]


A bit of sunshine is good for everyone, welcome back!
posted by Brandon Blatcher at 8:24 AM on August 3, 2008 [1 favorite]


Welcome back! I was wondering about you a few days ago, and hoping we'd see you again. Hurray!
posted by Quietgal at 8:37 AM on August 3, 2008 [1 favorite]


Hoorah! I was clicking around the other day wondering how she was. Glad to see you're back nickyskye! :D
posted by saturnine at 8:50 AM on August 3, 2008 [1 favorite]


flapjax perhaps you misunderstood me. Following gnfti's comment about it getting nice in here, I was agreeing wholeheartedly. It feels like a Brand New Day. It is wonderful to have nickyskye back, and with a medical report that is encouraging. I agree she has always been full of delight.
posted by netbros at 9:06 AM on August 3, 2008 [1 favorite]


great. while we're missing people, I want t r a c y and migs back pls
posted by bonaldi at 9:06 AM on August 3, 2008 [1 favorite]


Does this call for a hearfelt "yay?"

It does.

Yay!
posted by Kattullus at 9:08 AM on August 3, 2008 [1 favorite]


This is a flagrant misuse of MetaTalk and I have flagged it as such. Still...hey there, cutie.
posted by ColdChef at 9:14 AM on August 3, 2008 [1 favorite]


Awesome! Welcome back!
posted by COBRA! at 9:37 AM on August 3, 2008 [1 favorite]


Welcome back, and glad to hear the good news!
posted by Miko at 10:03 AM on August 3, 2008 [1 favorite]


So glad things are looking up! Been thinking about you! Welcome back!
posted by pearlybob at 10:30 AM on August 3, 2008 [1 favorite]


It's not healthy to leave a stick up there for that long, WCityMike.
posted by yhbc at 10:38 AM on August 3, 2008 [3 favorites]


Don't have any sort of formal connection to nickyskye, but I've always felt her comments and conduct are awesome examples of how I can do better, without ever coming across as being preachy or moralistic. She doesn't tell anyone how to act, she inspires positive behavior simply by being herself. Welcome back!
posted by Alvy Ampersand at 10:44 AM on August 3, 2008 [1 favorite]


Glad to see you back in these parts!
posted by chimaera at 10:49 AM on August 3, 2008 [1 favorite]


Good to have you back!
posted by tomcooke at 11:03 AM on August 3, 2008 [1 favorite]


Hoo-ray!
posted by Mister_A at 11:04 AM on August 3, 2008 [1 favorite]


Awesome!
posted by katillathehun at 11:15 AM on August 3, 2008 [1 favorite]


A very warm welcome back! Glad things are going so well for you!
posted by gingerbeer at 11:27 AM on August 3, 2008 [1 favorite]


This is good news; Very Good News. Un abrazo muy fuerte.
posted by adamvasco at 11:33 AM on August 3, 2008 [1 favorite]


Glad to see you back nickyskye.
posted by onalark at 11:37 AM on August 3, 2008 [1 favorite]


WCityMike, if you think there's a relevant comparison to be made between a minor celebrity joining the site and a longtime outstanding member resurfacing after battling life-threatening illness, you're more tone deaf than I ever thought. Your comment is boorish, and for giving the appearance that the people you've quoted might say such flippant things here, it borders on libelous.

Anyway, this isn't about you. Have a glass of champagne. Punch and pie are yonder.
posted by Ambrosia Voyeur at 11:38 AM on August 3, 2008 [3 favorites]


I'm giving myself a self-imposed timeout.

Thanks. I suggest going to that atrium on the top floor of the downtown library, it's a really nice place to hang out and read and think.
posted by jessamyn (staff) at 12:02 PM on August 3, 2008


Oh, Great! nickyskye favorited every comment in the first half of this thread.
Christ, what an asshole.
posted by Balisong at 12:05 PM on August 3, 2008 [1 favorite]


So glad you're back!
posted by rtha at 12:08 PM on August 3, 2008


oh dear, I favorited every comment in this thread. Waggy-tailed enthusiasm out of control. Is that totally cringeworthy? I don't care. It's good to hang out with MeFites again, hurf durfs and "what an asshole" included, lol *smiles sheepishly. I like all of MeFi, even and sometimes especially because of the no bs rough parts.
posted by nickyskye at 12:13 PM on August 3, 2008


I give up, who?

(context?)
posted by Eideteker at 12:17 PM on August 3, 2008


I give up, who?

I think she's the chick that's always posting anonymously to AskMefi.
posted by Brandon Blatcher at 12:20 PM on August 3, 2008 [1 favorite]


Welcome back, nickyskye -- I'm so thrilled you are back and doing well!
posted by mothershock at 12:21 PM on August 3, 2008 [1 favorite]


PS Devils Slide, I'm so sorry about the loss of your father-in-law. And especially to mesothelioma. That is not a fun way to die. It's usually slow and suffocating. And, as far as I know, preventable if the person working with asbestos wears a mask. May he rest in peace.

About a decade ago I got an asbestos inspector's license because an architect friend told me it was an easy way to make an extra $25 grand a year. Once I took the government run class, I realized I would never inspect an asbestos site with a 100 foot barge pole, much less close up, lol. The companies who hire asbestos inspectors don't want the site owner, or the staff working there, to be "alarmed" by an asbestos inspection crew turning up in hazmat gear.

I understood then what a terrible scam the entire asbestos business is and I feel disgusted that so many people's lives are endangered by the stuff when it becomes airborne. Like on 9/11.

About your well intentioned comment. See, the thing with cancer is that it's never "a clean bill of health" and "in complete remission". That would be called a cure for cancer and there isn't one, yet.

Certainly not in the case for any of the three cancers I'm surviving. Especially tall cell papillary cancer. I'll need to get tumor marker tests every 2 months for the rest of my life, to see if the cancer has metastasized to lungs, bones, brain or other organs. And a Whole Body Scan once a year, using more radiation. It's living with a time bomb really, not a clean bill of health.

The treatment for cancer can also cause cancer. Like the radioactive iodine used to treat thyroid cancer: "Radioactive iodine-treated patients had a 75-percent higher incidence of stomach cancer, a 53-percent higher incidence of breast cancer".

That said, I'm slowly coming back from the ashes of dealing with the surgery and the treatment. It's wonderful to be alive.
posted by nickyskye at 12:38 PM on August 3, 2008 [3 favorites]


(context?)

context
context
context

I only know nickyskye through her contributions to this site over the years, but it's been more than enough to engender feelings usually reserved for people I hug tight. Can't tell if you're being facetious or not Eideteker, but thank you anyway for the opportunity to point folks who may honestly not know the who or why of this thread towards noticing nickyskye, her contributions here, and the fact she's healthy enough to not poison computers any longer.
posted by carsonb at 12:43 PM on August 3, 2008 [1 favorite]


That's one harrowing experience nickyskye. Glad you made it.
posted by jouke at 12:51 PM on August 3, 2008 [1 favorite]


w00t w00t!

Welcome back! *throws virtual selfcleaning confetti everywhere*
posted by konolia at 1:13 PM on August 3, 2008 [1 favorite]


So glad to see you're back nickyskye. When I saw that you had commented again on Mefi I got a huge and uncontrollable grin. All the best.
posted by jokeefe at 1:16 PM on August 3, 2008 [1 favorite]


she's healthy enough to not poison computers any longer

LOL, carsonb, there were mixed messages about going near a computer after taking that big dose of radioactive iodine.

The Director of Nuclear Medicine at NYPresbyterian said it was no problem and seemed smugly amused people had asked him in the past if their radiation would harm more than just the people in their lives but maybe also kill their valuable houseplants, especially their orchids. I kind of understood how people would be protective of their orchids.

Other doctors/hospitals are much more serious about isolating a person who takes a dose of radioactive iodine above 30 millicuries.

After swallowing the 154 millicuries dose radiation over 2 days, the big dose offered in a lead cannister with the person giving me the dose hiding behind a screen, a few days off the computer, jonesing for a web fix and not wanting to touch objects in my apartment, because I knew my perspiration was radioactive, I had to check my email. Just had to. And the computer crashed, numerous times over the next several days' attempts. So I think that Director is misinformed about the damage the radiation can do, maybe especially above 100 millicuries?

It would be interesting to go through my apartment with a Geiger Counter. I wonder how long the radiation traces last?
posted by nickyskye at 1:22 PM on August 3, 2008


Hey, glad you're back, nickyskye!
posted by StrikeTheViol at 1:22 PM on August 3, 2008 [1 favorite]


cheers
posted by edgeways at 1:36 PM on August 3, 2008 [1 favorite]


radioactive sweat... there is something terrifying and cool about that all in the same go.
posted by edgeways at 1:38 PM on August 3, 2008 [1 favorite]


Yay! From one chick who has to watch her Tg levels to another, it's great to have you back and in good spirits, Nicky.

Speaking of radioactivity, I remember the first time they gave me a big fat dose of I-131 (though my dose wasn't quite as high as yours) -- I decided that it's kind of like being a temporary superhero, but with one really irritating power. For example, among the cautionary instructions I was given (which are additionally unsettling to hear when delivered by a technician standing behind a door in a modified Hazmat suit, while I was sitting on a table in a paper gown) was the admonition to stay away from pregnant women, as my Mere Radioactive Sweat (patent pending) could damage the fetus within.

Easy enough with women I know, I said; how do I know who's pregnant on the train or in the grocery store?

There was a pause from behind the door. "Well... just look at them."

What about women who are pregnant but aren't yet showing?

Pause. "Well... just ask."

Every woman I see on the train or in the store? I'm going to ask if she's pregnant, so that I can quickly scoot away?

Another pause. "I don't think you're going to feel like going out much, anyway."
posted by scody at 1:50 PM on August 3, 2008 [8 favorites]


Here's to glowing in the dark!

Welcome back. I hope your atoms are playing together nicely.
posted by tkchrist at 2:16 PM on August 3, 2008 [1 favorite]


Good to see you back, nickyskye!
posted by jack_mo at 2:31 PM on August 3, 2008 [1 favorite]


LOL, scody, great comment, full of comfort and can-relate-all-too-well bellylaughs.

I guess the staff hides behind hazmat protection because they still have functioning thyroids and the one sitting in the hospital gown gulping the radioactive pill doesn't. Or won't after the treatment. Maybe they should make a lead lined outfit for patients getting RAI?

And what about stepping into an elevator full of people or if the elevator fills up? I felt guilty taking a cab back home, the poor cab driver. It would seem the hospitals are economizing by not putting people taking this radiation into isolation.

Ah, are you surviving ThyCa too? Or Graves disease?

Fellow MeFite, hildegarde is a ThyCa survivor too. Her MeMails and wonderfully written, honest blog entries about her dealing with her own situation *really* helped me get through a lot of practical issues and the healing process.

Yes, a week had passed after the ingestion of the radiation dose and my neighbors invited me to a celebratory (no metastases! YAY!) dinner at my favorite local restaurant, Roberto's on 50th and Ninth Ave. (He has a Prix Fixed Lunch Menu $13 Monday to Friday from 12:00pm to 3:30pm, three spectacular courses. mmm). I worried that the women sitting at tables nearby might be pregnant but not showing yet. Apparently, sitting a yard from anybody for an hour would be equivalent to the radiation of a chest X-ray. It would have been weird to go up to them and ask, "Do you think you might be pregnant?" and I felt guilty for not doing that.

I'm particularly fond of the letter from the Nuclear Medicine Dept I have to carry around on my person in case the radiation emitting from my body over the next 3 months (!) sets off terrorist alarms in the subway, government building or airport.

I think the radioactive sweat/saliva/pee and poop thing goes on for 40 days. But I guess the radiation is detectable for 90. The docs say to flush two or three times when going to the bathroom. Mischievous thoughts come to mind like what could I do with radioactive poop or pee? and what would happen if I just flushed once? Would my neighbors fry slowly? And I feel guilty about the environmental impact too. oy.
posted by nickyskye at 2:43 PM on August 3, 2008 [1 favorite]


We missed you Nicky :)
posted by vronsky at 2:47 PM on August 3, 2008 [1 favorite]


Well the names have all changed since you hung around,
But those dreams have remained and they're turned around.
posted by waraw at 2:58 PM on August 3, 2008 [1 favorite]


Very glad you're back, Nicky.
posted by stinkycheese at 3:16 PM on August 3, 2008 [1 favorite]


Thanks for being one of us, nickyskye. So glad to hear that you're on the mend!
posted by Lynsey at 3:16 PM on August 3, 2008 [1 favorite]


the names have all changed since you hung around

oh nooo! Like who? There's that [NOT HERMITOSIS-IST] rascal who changed his handle. Who else?
posted by nickyskye at 3:25 PM on August 3, 2008


Not to rain on nickyskye's radioactive parade, but is it really true that after treatment a person would still be radioactive for several weeks out and pose a risk to other people because of it? I mean I can see technicians and medical personnel wanting to protect themselves due to multiple, daily exposures, but setting off radiation detectors? I can't imagine radiation being any worse than those old Fiestaware dishes.

I don't know it just seems like one of those liability protection things that don't really exist outside the minds of insurance people. Someone send her a Geiger counter.

Also, welcome back.
posted by geoff. at 3:48 PM on August 3, 2008 [1 favorite]


Well, I'm not here, for example.

(Welcome home!)
posted by It's Raining Florence Henderson at 3:51 PM on August 3, 2008 [1 favorite]


Yay nickyskye! I'm so glad to see you!
posted by small_ruminant at 3:54 PM on August 3, 2008 [1 favorite]


This is really cool. I'm saw someone lament not too long ago that you weren't currently posting. I read the post they linked to and thought your absence was a shame. As a newish user I hear a lot about great members I've never had the chance to interact with who have left. It's great to hear about one returning.
posted by Solon and Thanks at 4:05 PM on August 3, 2008 [1 favorite]


Nickyskye, I was thinking of you the other day. I'm so glad to hear you're doing well.
posted by LoriFLA at 4:26 PM on August 3, 2008 [1 favorite]


Welcome back, nickyskye! It's good to hear you're doing better.
posted by oneirodynia at 4:39 PM on August 3, 2008 [1 favorite]


Nicky,
I'm so super-glad you're back with your radioactive ass, it's a banner day! Huzzah.
posted by Divine_Wino at 4:47 PM on August 3, 2008 [1 favorite]


*raises torch and pitchfork, begins shouting*

As I am just now, literally back from the mountains... I stick marshmallows on your pitchfork, and say ... eaT UP!
posted by R. Mutt at 4:53 PM on August 3, 2008 [1 favorite]


geoff, is it really true that after treatment a person would still be radioactive for several weeks out and pose a risk to other people because of it?

From the RadiologyInfo site:

"Patients who need to travel immediately after radioactive iodine treatment are advised to carry a letter of explanation from their physician. Radiation detection devices used at airports and federal buildings may be sensitive to the radiation levels present in patients up to three months following treatment with I-131. Depending on the amount of radioactivity administered during your treatment, your endocrinologist or radiation safety officer may recommend continued precautions for up to several weeks after treatment."

Patients Given Medical Radioactive Materials May be Detained in Antiterrorist Security Sweeps

Police Detainment of a Patient Following Treatment With Radioactive Iodine

From the Nuclear Regulatory Commission about patients ingesting more than 30 millicuries of RAI.

Check out the strict guidelines for anyone ingesting a dose of radioactive iodine [pdf] and the basic info.

It is common for patients receiving more than 30 millicuries of radioactive iodine to be admitted to hospital to stay in a lead lined isolation room for 3 days to a week.
posted by nickyskye at 5:15 PM on August 3, 2008


Oh, hooray!!!!!

nickyskye is one of the reasons I came wandering back to the 'Filter after my own leave of absence. So glad to see you and hear that you are well!!!! :)
posted by grapefruitmoon at 5:27 PM on August 3, 2008 [1 favorite]


My heart leapt when I saw you had added someone to your contacts.

Same here :)

That's about all I can write sensibly right now coz I'm all torn up with happiness.
posted by UbuRoivas at 5:30 PM on August 3, 2008 [1 favorite]


oh drat, when favoriting grapefruitmoon and Ubu's comments it said "You hit your favorite limit for the day". I didn't think anyone could hit a favorite limit. :) Tomorrow. A whole 'nother day to enjoy.

Thank you so much for making me feel so welcome and loved, it's incredibly kind and nice of you.
posted by nickyskye at 6:10 PM on August 3, 2008


FAVORITE LIMIT? There's a FAVORITE LIMIT?
posted by flapjax at midnite at 6:17 PM on August 3, 2008 [1 favorite]


Yes, there is a daily limit which has I think been reached twice before, ever.

Hi nicky, good to see you.
posted by jessamyn (staff) at 6:26 PM on August 3, 2008 [1 favorite]


PS Devils Slide, I'm so sorry about the loss of your father-in-law. And especially to mesothelioma. That is not a fun way to die. It's usually slow and suffocating. And, as far as I know, preventable if the person working with asbestos wears a mask. May he rest in peace.

It really is a terrible way to die. He was admitted to the hospital less than a week before his death because he couldn't breathe, and he was down to 124 lbs. He wanted the news of his cancer kept from my wife (his step daughter) because he knows how sensitive she is, and because she's still torn up about her younger sister's death a year ago in a traffic accident. My in-laws live in Oregon, and we live in the Bay Area, so we didn't see him when he was sick. Every time we told her parents we wanted to come up to visit, they'd make excuses and tell us it wasn't a good time, precisely because they didn't want my wife to see her dad in that state.

But about mesothelioma, it really is a horrible disease and is tantamount to a death sentence. But from what I've read, in addition to working with asbestos, one must have a genetic predisposition to the disease in order to develop it, and men are four times more likely to acquire it. 27.5 million people (just in the US, I believe) have worked with asbestos during the three decades before it was banned, and about 3,000 people a year die of mesothelioma in the States. So it's still not as bad as it could have been potentially.

Regarding "complete remission", I realize I was being a bit hasty, and that one is always at risk of relapsing, but I truly hope you continue to test negative and thrive.
posted by Devils Slide at 6:27 PM on August 3, 2008 [1 favorite]


Yes, there is a daily limit which has I think been reached twice before, ever.

Only twice? Then tehloki's not as prolific as I thought.
posted by UbuRoivas at 6:55 PM on August 3, 2008 [1 favorite]


I didn't get a favorite from nickyskye because I got real favorites from two other people and she must have thought she already gave me one.

However, I didn't get a favorite from nickyskye.

And I'm glad she's back, and hope that she's feeling better.

posted by yhbc at 7:39 PM on August 3, 2008 [1 favorite]


Hurray for the news that you are doing better and that all indications so far are good, and double hurray for you coming back here. I've very much admired your comments in the past, am so pleased I will be able to see them in the future, and am seriously in awe of your radioactive poo and your ability to deal with it. :)
posted by onlyconnect at 7:55 PM on August 3, 2008 [1 favorite]


are you surviving ThyCa too? Or Graves disease?

ThyCa here, too -- in remission for a decade! (So apparently I'm officially in the "win" column medically, as my endo told me.)

The docs say to flush two or three times when going to the bathroom. Mischievous thoughts come to mind like what could I do with radioactive poop or pee? and what would happen if I just flushed once? Would my neighbors fry slowly? And I feel guilty about the environmental impact too.


I know! I felt so bad flushing over and over, just to get the glow-in-the-dark pee to go far, far away. (Although I have to admit to being slightly disappointed that it didn't actually glow in the dark. What's the point of having a stupid, temporary super-power if you can't at least make a party trick out of it?)
posted by scody at 8:02 PM on August 3, 2008 [1 favorite]


Yay, nickyskye is back! Most excellent, it's just not the same around here without you, gf. *dons lead vest and gives nicky a big hug*

Thank you so much for making me feel so welcome and loved, it's incredibly kind and nice of you.

"And in the end the love you take is equal to the love you make..." - just sayin.
posted by madamjujujive at 8:18 PM on August 3, 2008 [1 favorite]


Only twice? Then tehloki's not as prolific as I thought.

After someone hits it the first time, we don't really care if they do it again; they know. There have been as far as I know a total of three people who actually hit it and went, "what?! a limit?!".
posted by cortex (staff) at 8:22 PM on August 3, 2008


Fact: The admins also limit the amount of smiles and hugs they dole out every day.
Sad, sad people.
posted by Alvy Ampersand at 8:24 PM on August 3, 2008 [3 favorites]


Little late to the party here, but it's good to see you back nickyskye. Even better to know you're doing better.
posted by puke & cry at 8:43 PM on August 3, 2008 [1 favorite]


Cake! Cake!
posted by stagewhisper at 9:26 PM on August 3, 2008 [1 favorite]


Clearly the daily favorites limit needs to be set higher. Welcome back nickyskye!
posted by casarkos at 9:50 PM on August 3, 2008 [1 favorite]


Huzzah! Welcome back, nickyskye!
posted by Asparagirl at 9:55 PM on August 3, 2008 [1 favorite]


Welcome back, and don't bite anything that you don't want developing superpowers. Skyederman, Skyderman, does whatever a erm, never mind.
posted by BrotherCaine at 10:28 PM on August 3, 2008 [1 favorite]


Days like today make me feel like we are some kind of invisible family; I wish that feeling could stay forever.

NickySkye, I expect there will be a meetup so everyone within a sane distance can give you a hug.

May you live long, and this whole episode become a distant memory.
posted by Unicorn on the cob at 10:43 PM on August 3, 2008 [1 favorite]


aww Devils Slide, It sounds like your father-in-law really had a painful exit. Now that I've thinking more about the reality of the whole Final Exit subject, I wonder what dying is like and am inclined to volunteer in a hospice, to be there for others in their process of making the final exit.

You said: mesothelioma, it really is a horrible disease and is tantamount to a death sentence

Truly, the act of being born is tantamount to a death sentence. :)

What I mean to say is that everyone dies and that each person's time of death is unknown. Lots of things used to be considered a death sentence, even getting influenza. Like this story, "Adelaide mum defies odds surviving mesothelioma", while on the flip side, some people can get a little cut and die of mrsa.

My point is that I don't think it's particularly useful to get fixed on black and white absolutes in terms of "death sentence" or "complete remission" but to be prepared for changes in any number of directions.

I'm sorry your wife had to face the sudden loss of her younger sister last year. How really horrible for her.

But I think she missed out on not spending time with her dying step-father, that others felt the truth of his impermanence had to be hidden from her. It was time she could have shared with him, loving him, comforting him, learning from him and receiving his love for her. I've felt really hurt when people I love ran away from my being ill because they were too "delicate" to handle it. And yet I've been fearful around others who were seriously ill too. So I can relate to that fear.

I know how profoundly grateful I've been for the friendship of MeFites these last 3 years since being diagnosed. One day there will be a post from a MeFite that I've kicked the bucket, or I'll be sharing about other MeFites I care about who died. Such is life.

The reality is that all human beings get seriously sick at some time, maybe for a long time and we all die. Better to be friendly to each other in the process, since we're all in this living and dying thing together.
posted by nickyskye at 10:58 PM on August 3, 2008 [17 favorites]


yhbc , aww noo noo, I screwed up and should have favorited you. I will, promise. :)

And stagewhisper, oh yum, cake!
posted by nickyskye at 11:01 PM on August 3, 2008


फ़ुल कि शुरुवत कलिसे होति है
ज़िंदगिकि शुरुवत जां से होति है,
प्यार कि शुरुवत दोस्तिसे...
और दोस्ति कि शुरुवत आपसे होति है !!!

I missed you nicky!
posted by hadjiboy at 1:16 AM on August 4, 2008 [2 favorites]


The reality is that all human beings get seriously sick at some time, maybe for a long time and we all die. Better to be friendly to each other in the process, since we're all in this living and dying thing together.

I am quoting what you just said because you are a wise, wise lady.
posted by grapefruitmoon at 2:44 AM on August 4, 2008 [3 favorites]


stavrosthewonderchicken: "I will drink to nickyskye, yes, I will very happily do that..."

Like you need an excuse ;-) I don't need an excuse, either, but this would be an excellent one if I did. It's always good to hear someone having a win over cancer.

*raises drink in the general direction of MetaFilterLand, tosses glass in fireplace*
posted by dg at 3:01 AM on August 4, 2008 [1 favorite]


*also raises drink to Mefistan; chooses not to toss glass into three-bar-fire*
posted by UbuRoivas at 3:10 AM on August 4, 2008 [1 favorite]


aww yay :D

I've got a history of cancer in my family - started with my dad 10 years ago, who survived Non-Hodgkin's Lymphoma (in remission, and he's generally fine, but he has to do a checkup every so often) and since then various relatives have either fought cancer off or surrendered to it. It's always hard, but I suppose it was harder for my dad's time because he was the first (at least in a long while) in our massive family tree, and I was so young I didn't quite get it all.

so lots of hugs to you, well done for fighting off a major obstacle, and here's hoping you are still well for the rest of your life - at the very least for 10 years and counting like my dad!

*hugs* and if there's anything we can do please let us know.
posted by divabat at 4:26 AM on August 4, 2008 [1 favorite]


The SNR is far better with you back. :)
posted by arimathea at 8:04 AM on August 4, 2008 [1 favorite]


Glad you are back, nickyskye. It's certainly good to see you here again.
posted by quin at 8:14 AM on August 4, 2008 [1 favorite]


HUGS!

It's great to know that you're feeling well enough to be online - sending you the best wishes for continued good news and happiness!
posted by mightshould at 9:32 AM on August 4, 2008 [1 favorite]


Aha! I'm glad you're on the other side of radiation, Nicky! Go easy on yourself, these next few weeks aren't a walk in the park either. :/ Hey, if you're interested, I built an exhibit in Second Life about ThyCa hereif you're interested. :) It would be interesting to get your story into an exhibit...the American Cancer Society has a pretty active presence there. :)
posted by Hildegarde at 10:26 AM on August 4, 2008 [2 favorites]


Oh man, Hildegarde, your blog, your MeMails were an incredible gift. Thank you *so* much for your sharing your journey. I loved what you said about Synthroid and the different types of tiredness and sleepiness. Damn, I've never felt so limp, struggled so hard to stay awake, get up, move. Yikes. And the endocrinologists I've seen, all 4 of them, have been all jerks of one kind or another. 3 have nice qualities but did things that were really hurtful, so hurtful I didn't want to see them again. Hoping to find one who can communicate like a normal human being.

Thanks for telling me about the post radiation treatment fatigue. I'm still crawling along.

Trying to log on to the Second Life site to see what you wrote there. What is "an exhibit" there?

I really want to share some additional posts on my site as well, for anyone out there who is coping with this issue. "Jellinger and the AACE estimate there will be approximately 17,000 new cases of thyroid cancer in the USA this year, roughly 70% of them women. There are currently about 188,000 Americans living with the disease." 13 Million May Be At Risk and Undiagnosed.

And now with the whole post Chernobyl fiasco impacting a huge population of Europeans with thyroid cancer, I think this info will be really helpful.
posted by nickyskye at 2:22 PM on August 4, 2008


It was a pleasure to share the experience with you! No one really warns you about the post-radiation issues. It's not like it all suddenly gets better. :/ I'm glad you had that knowledge going in. My endo isn't that good at communicating either; she ignored all my post-radiation symptoms, but upped my thyroxine based exclusively on the bloodwork results. Once your thyroxine is up to a reasonable level, you will feel A LOT better. It just takes so damn long to get there.

Finding an endo that will actually listen and won't let you linger in fear and pain for months on end seems to be a rare thing. :/

I've got some pictures of my exhibit here: http://www.mazar.ca/2008/08/04/cancerland/ Ping me if you want help getting in!
posted by Hildegarde at 2:59 PM on August 4, 2008 [1 favorite]


on the plus side you got a hell of an excuse not to go anywhere you don't want to go, or to talk to anyone (in person) you don't want to talk to...
Sorry, I'm radioactive
posted by edgeways at 7:49 PM on August 4, 2008 [1 favorite]


That is freaking awesome news. I'm so glad you're okay and healthy and back among MeFites :)
posted by Phire at 7:51 PM on August 4, 2008 [1 favorite]


Blind Dating, with Nickskye

Guy on the phone: So, tell me about yourself, are you hot?

Nickyskye: Hell yeah and I got a letter to prove it!
posted by Brandon Blatcher at 7:57 PM on August 4, 2008 [4 favorites]


Ok, the following comment is all about the thyroid thing. It's meant for Hildegarde or anyone else who has been through this particular wringer.

Oh wow Hildegarde, I totally love your illustrations of the experience. I tried joining Second Life but it seems I don't have some component in my computer needed to be able to see the visuals there. So I'm glad you included the stills. on your blog.

Your construction of the story stimulated much thought and is inspiring as well as comforting. Images are powerful in conveying meaning in different ways than words. I collected a few nicely awful images after reading your comment.

I loved the fridge image you created for the cold one feels. I chose to delay the surgery until April end so it would not still be bitterly cold outside. I used a heavy quilt the whole summer.

Ideas came to mind about:

The panic to find out what the hell is this thyroid anything anyway? The endless hours of research on the web, looking for answers, for support groups, for doctors, for clinical trials, for how the story goes in treating this thing, trying to find out the process.

And then before I could adjust to the shock of having cancer, being repeatedly told by others, including the surgeon, that I am lucky that this is the good kind of cancer to get if one has to get cancer and just be positive it will all be alright (some kind of bizarre denial bs) in spite of the reality that there is one form of thyroid cancer (anaplastic) that kills in weeks/months and several kinds that typically metastasize to ack, the bones, lungs etc.

The symptoms: The tiredness, feeling weighted down, delayed reflexes, the sleeeeepiness, the mental state of ZZZZZZZZzzzzz, weary, like the spark plugs taken out of a car, torpid, like my lifeforce battery removed, just the idea of doing anything made me run for the covers.

The bloated face, puffy hands and paperthin fingernails, hair falling out, so many little things adding up to feeling not okay.

They used to called puffy-bloated symptoms of hypothyroidism Myxedema.

I'm totally intrigued by your image of the visit to the endocrinologist. Like she's a goddess in a temple? Too elite to take the time to answer questions or work on solutions?

And then not being informed by the docs the details with any practical advice, like my parathyroid glands could (and did) stop functioning and might for the rest of my life, causing osteoporosis and near death low calcium (hypocalcemia) unless I take calcium/magnesium pills 3 times a day the rest of my life. Already got a subcutaneous calcification.

Being treated like I'm a complete idiot by the doctors. grrrr! It's so amazing how articulate the people in online support groups are, expert in the disease and then seeing the doctor and being treated like a lobotomy case.

Some people surviving cancer Do Not Want To Know. They do the ostrich head in the sand thing. Getting solid, reality based, medically sound, practical info has been hard and the doctors behave as if I'm a pain in the ass for asking *any* questions, and forget bringing in clinical studies off the web, they wave their hand and say automatically "Most of what's on the web is crap" (when the info I'm bringing to the office is medical studies, physicians' papers etc).

Then looking for people who had been through the radiation treatment and how they dealt with the side effects, the salivary gland damage, the teeth rotting damage when the saliva disappears. The post radiation mouth sores (aphthous stomatitis).

Worrying if I'll then be a toothless, cottonmouthed crone in constant pain and devoid of lifeforce. It has been damn scary trying to get the details.
posted by nickyskye at 8:17 PM on August 4, 2008 [2 favorites]


So glad you're back, Nicky. xoxo
posted by psmealey at 12:48 AM on August 5, 2008 [1 favorite]


GREAT news, and GREAT to have one of MeFi's kindest and most interesting posters back.

Welcome back, nickyskye!
posted by Joseph Gurl at 3:06 AM on August 5, 2008 [1 favorite]


Yay! :)
posted by dejah420 at 11:25 AM on August 5, 2008 [1 favorite]


I've been on vacation and barely connected to the internets, so I'm just seeing this and YAY!!!!!!
posted by Stewriffic at 11:45 AM on August 5, 2008 [1 favorite]


And in the middle of all that, everyone says, "Oh, your surgery is over! So you're getting better now, right?"

Ha!
posted by Hildegarde at 1:37 PM on August 5, 2008 [1 favorite]


"Oh, your surgery is over! So you're getting better now, right?"

The key to answering this question is a small matter of some simple preparation.

1) Take to wearing turtlenecks or scarves.

2) When someone announces that you're ALL! BETTER!, pull down the collar or scarf to reveal your neck scar, on either side of which you have attached two perfect Frankenstein bolts.

3) Laugh with radioactive glee as children and adults alike scatter!
posted by scody at 3:52 PM on August 5, 2008 [1 favorite]


er... 4) PROFIT!!
posted by scody at 3:54 PM on August 5, 2008 [1 favorite]


Welcome back, nickyskye.
posted by goshling at 4:15 PM on August 5, 2008 [1 favorite]


Just saw this. Welcome back, nickyskye! I'm so glad about your good news!
posted by hurdy gurdy girl at 7:40 PM on August 5, 2008 [1 favorite]


Hmmmph Scody. I dunno. I know you're kidding, but people fleeing from the sight of your scar (has happened to me) is a really gutting experience. Though perhaps the bolts would help. :)
posted by Hildegarde at 7:59 PM on August 5, 2008 [1 favorite]


Oh, I know -- people recoiled when they saw my scar after my thyroid surgeries too (I had two, back-to-back). People also recoiled after I had double-jaw surgery (I had unusually brutal bruising and swelling, due to abnormal bleeding brought on by then-undiagnosed hemophilia). I literally made friends and family members cry involuntarily when I first got home from the hospital, and then had mothers shielding their kids from me for the first couple of months when I was in public....all of which certainly does a number on a girl's self-esteem! I actually took to wearing a scarf over my face with huge sunglasses, which was perhaps easier for me to get away with than for the average woman, as I live in L.A. and thus people were likely to think that I might have been a celebrity who had recently undergone a little "work." ("Oh my god... is that... Nicole Kidman? In the Pasadena Walgreen's?? Gee, I would have never expected her to drive a Hyundai.")

So yeah, cracking jokes is the way I learned to keep going through my various medical travails (I've even developed an ongoing performance/comedy/multimedia piece about being a walking JAMA article over the years... I think I've got a performance recorded somewhere, I should try to find it and post it sometime.)
posted by scody at 8:18 PM on August 5, 2008 [3 favorites]


double-jaw surgery

dang, scody, owww!
posted by nickyskye at 2:03 AM on August 6, 2008


You really should, scody. :) I'd love to see it!
posted by Hildegarde at 4:18 AM on August 6, 2008


I saw you in my sidebar and yelled WHOOHOO!! in all caps with two exclamation points. Wonderfulness. Joy and hugs and pie.
posted by louche mustachio at 9:42 AM on August 7, 2008 [1 favorite]


Wish I could give you a hug. Welcome back, Nicky.
posted by zennie at 1:27 PM on August 7, 2008 [1 favorite]


I don't know how I missed this! Welcome back nickeskye and hip-hip-hooray for your good health news!!

great. while we're missing people, I want t r a c y and migs back pls

Aww! bonaldi, I will tell Tracy you miss her! And that she was mentioned in the same sentence as Migs, one of her big mefi crushes, lol.
posted by zarah at 1:28 PM on August 7, 2008 [1 favorite]


zarah, please tell tracy I miss her too ...
posted by madamjujujive at 1:53 PM on August 7, 2008


(dropped you a mail)

Welcome back, Nicky! Once again, you've been missed, and hope you're doing better now. :-)
posted by the cydonian at 6:55 AM on August 11, 2008


Way late, but was just catching up on my MeFi and saw this thread. I'm so glad!
posted by Locative at 9:45 AM on August 21, 2008


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